March 7, 2010
Dear Friends,
One year ago, on February 25, 2010 I was diagnosed with sinus cancer. What a year it has been! During this past year I have been getting infections quite regularly. It seemed that I would be on antibiotics for 2 weeks, and be fine for a week or two and then get infected again. This has been going on since the end of my chemo and radiation since July 1 – eight months! Whew!
I had not been to church during the past year due to my continued illness and infections. The most embarrassing part of the infection is that I would get horrible breath. It was from my sinus cavity, so there was nothing that I could do about it. No amount of brushing my teeth or mouth rinse would help. It would come out with my breath – so, since I had to keep breathing, I pretty much became a hermit. For those of you who know me, it has been very hard for me. I love people and am a hugger. I could not touch, let alone hug the ones who I love.
On Valentine’s Day, I went to church, briefly, for the first time in a year. I told everyone to stay away from me, since I was currently infected. One of my friends, Jane, said that she was a lung transplant nurse, and that her patients got an infection called pseudomonas, which was characterized by intense odor. Was I on the antibiotic CIPRO? I told her no, but I would ask my ENT Doctor Brad to culture me, again. (He did culture me in the beginning, months ago, but nothing appeared). Luckily my Doctor Brad is an absolute sweetheart with no ego and was willing to culture me again. The culture came back positive for pseudomonas and STAPH! I have been on CIPRO now since February 22, and I feel better than I have in over one year!
God is definitely in charge and there are no coincidences! The first time I went back to church, in spite of my infection, I was given the answer to my continued illness. Praise Jesus!
I want to thank-you all for your continued prayers and support.
Love,
Linda
Sunday, March 7, 2010
Saturday, January 30, 2010
Letter from Linda
Dear Friends and Family,
2009 has been an incredible year!
This year has been a journey of miracles. I have felt the love and prayers from all of you. With the Grace of Jesus Christ, I have gone through this year with incredible peace. Even though I had 3 major surgeries, 2 minor surgeries, 4 hospitalizations, 3 chemotherapies and 30 radiation treatments!
Facing death makes you realize what is important in life – The old saying, “If you have your health, you have everything”, is true. I did not truly appreciate that phrase until this year. If you are in good health, thank God for the gift! I was declared cancer-free on November 3! Friends and Family – the relationships in our lives are what matter. I am so grateful for my wonderful husband – Michael, my devoted daughter – Katrina and my dedicated sister – Annie, for being here and supporting me throughout this year.
Also, for the rest of my family and my dear friends who’ve kept in touch with wonderful cards, notes, emails, gifts, books, flowers, as well as 30 dinners during radiation treatments! Your thoughts and prayers have helped give me peace throughout this year. Thank-you!
In the midst of chemo and radiation we had to put my little dog Reggie to sleep. I was so upset that I went online and started looking at shelter dogs. All I can say is if you get a chance to rescue an older dog, don’t hesitate! Lily is an 8 year old poodle/terrier mix that we almost did not adopt because of her age. She has brought us incredible joy and happiness during a challenging time!
Katrina came home on February 24, 2009 for 2 weeks…she has been home for over 11 months. She is now ready to return to LA. If you recall, Katrina got emergency certified to become a host home provider in order that we would not lose our wonderful lady who lives with us. It is like being foster parents, except for special needs adults. Shari has been a part of our family for over 2 years. Shari has enriched our family with love and joy. I will miss Katrina dearly, but am grateful that I have a reason to get up in the morning. My favorite job was being a "Mom", with Shari I can be a Mom forever!
Michael has continued working, in order to provide our much needed insurance and income during this past year. He is very loving and caring – I am so glad that he married me 35 years ago! “In sickness and in health,” turns out to be a very real part of the wedding vows – definitely not to be taken lightly!
Each morning I wake up and thank God for another day! I hope that my experience has given you time to reflect on your own journey through life. Have a Blessed 2010!
Much love,
Linda
2009 has been an incredible year!
This year has been a journey of miracles. I have felt the love and prayers from all of you. With the Grace of Jesus Christ, I have gone through this year with incredible peace. Even though I had 3 major surgeries, 2 minor surgeries, 4 hospitalizations, 3 chemotherapies and 30 radiation treatments!
Facing death makes you realize what is important in life – The old saying, “If you have your health, you have everything”, is true. I did not truly appreciate that phrase until this year. If you are in good health, thank God for the gift! I was declared cancer-free on November 3! Friends and Family – the relationships in our lives are what matter. I am so grateful for my wonderful husband – Michael, my devoted daughter – Katrina and my dedicated sister – Annie, for being here and supporting me throughout this year.
Also, for the rest of my family and my dear friends who’ve kept in touch with wonderful cards, notes, emails, gifts, books, flowers, as well as 30 dinners during radiation treatments! Your thoughts and prayers have helped give me peace throughout this year. Thank-you!
In the midst of chemo and radiation we had to put my little dog Reggie to sleep. I was so upset that I went online and started looking at shelter dogs. All I can say is if you get a chance to rescue an older dog, don’t hesitate! Lily is an 8 year old poodle/terrier mix that we almost did not adopt because of her age. She has brought us incredible joy and happiness during a challenging time!
Katrina came home on February 24, 2009 for 2 weeks…she has been home for over 11 months. She is now ready to return to LA. If you recall, Katrina got emergency certified to become a host home provider in order that we would not lose our wonderful lady who lives with us. It is like being foster parents, except for special needs adults. Shari has been a part of our family for over 2 years. Shari has enriched our family with love and joy. I will miss Katrina dearly, but am grateful that I have a reason to get up in the morning. My favorite job was being a "Mom", with Shari I can be a Mom forever!
Michael has continued working, in order to provide our much needed insurance and income during this past year. He is very loving and caring – I am so glad that he married me 35 years ago! “In sickness and in health,” turns out to be a very real part of the wedding vows – definitely not to be taken lightly!
Each morning I wake up and thank God for another day! I hope that my experience has given you time to reflect on your own journey through life. Have a Blessed 2010!
Much love,
Linda
Wednesday, November 25, 2009
Letter from Linda
Dear Friends and Family,
Please forgive me for being out of touch. I had my ovarian surgery on September 18, 2009. The surgeons took out both ovaries, and my appendix, too!
For the first 24 hours after surgery I had no feeling in my right side, from my waist down to my toes. When the doctor kept touching my right leg, and asking me if I could feel it, I thought that she was kidding. When the doctor and the nurses gave each other “The Look”, I knew that this was serious. It was very weird when I touched my right leg, it was cold and I could not feel anything. It was like it was someone else’s leg! Luckily my medications were changed and I started to regain the feeling in my right side. I also got muscle spasms (charley horses) in my surgical area (stomach) for the first 2 days. Even though I could only feel on my left side, it was very painful. Eventually they stopped.
It takes about one week to culture all of the tissue, liquid, etc. that was removed. The initial biopsy showed no cancer. Fortunately, one week later, the final results agreed – I had no cancer in my ovaries or stomach area! Thank-you all for your thoughts and prayers!! With your prayers and the grace of Jesus, I did not have cancer!
On October 22, 2009, I had my pneumonia shot. I thought that it would be wise to have it as a preventative measure. Well, it was my first pneumonia shot (since I am 57 years old and it is recommended for 65 years and older) and as it turns out that I am allergic to the shot! I also had cellulites, which is an infection in the same spot I had the shot.
I spent 4 days in the hospital, from October 25 – 28, for the 4th time since February 25! I asked them if I could have a brass name plaque on the door, since I was such a frequent visitor! I knew that I had been there too often when my breakfast was delivered by Viola, and she said, “Hi, Linda, I saw your name on the order and wanted to deliver it myself, so I could see you.” She is a nice woman from the Philippines, who had become my friend since my first hospital stay in February.
On November 2, 2009, I had another PET scan. PET scans literally scan your body from head to toe, to see if there are any tumors or cancer present. I got the wonderful news on Tuesday, November 3, that I was CANCER FREE!!!!
I immediately went to bed for three days. I felt like I had been running continuous marathons since February 25, 2009. It was such a relief to be able to “let down”, and not have to prepare for more surgeries, chemo or radiation. I was only able to make a brief call to my sister, Annie, to give her the good news. Annie was able to let my side of the family know and Michael emailed the Wogan family to let them know the joyous news!
I apologize that it has taken me so long to get the news to all of my friends outside of the family circle.
I will have a follow-up PET scan in May, 2010. My treatment was a very aggressive course of treatment, because my cancer was so rare. I will continue to be monitored, at least once a week by my wonderful surgeon – Dr. Brad Andrews. He is such a kind, thoughtful, and gentle man. I am so fortunate to have him as my primary ENT specialist.
I do have some side effects, which may or may not be permanent. The chemo seems to have affected my hearing in both ears. I have trouble hearing the upper tones in both ears and I am border line needing hearing aids in both ears.
Also, my eyes will continue to change for about one year after the radiation. I will be getting a new pair of glasses this next month and I am trusting they will help my vision. I am able to drive (Thank-you, Jesus!) without any problem. It has mainly affected my reading (my eyes get tired easily) and my equilibrium. I am currently using a cane, so that I do not “tip over”. I refer to myself as “weeble-wobbly”. Luckily, it only affects my equilibrium outdoors or in large, open areas. Inside I am fine, as long as the ceilings are not too high and the rooms are not too big. So, it is not a problem in my home.
On my right hand, the thumb, pointer, and middle finger, as well as on my left hand’s thumb and pointer finger all have an irritation similar to frostbite. They turn red, purple and are bumpy. There is pain in my fingers and occasionally they bleed. The doctors think that this is another side effect of the chemo.
How fortunate I am that all of these side effects are minimal! They are not really going to affect my quality of life. I am so grateful to be alive! It is amazing how your priorities change when you have come face to face with death!
I am currently writing this update at the YMCA Snow Mountain Camp at Winter Park, Colorado. It is so peaceful and tranquil up here, up in the Colorado Rocky Mountains. There is snow on the ground and it ranges from 17 degrees at night to 37 degrees during the day. We have a 3 bedroom cabin with beautiful views. Michael, Katrina, Shari and I have been enjoying the calmness of the mountains. There is no TV, so I have been busy reading, relaxing, and writing this letter. Shari is putting together a 1000 piece crossword puzzle. She is absolutely amazing! (Shari is the special needs woman who lives with us). Katrina visited an old friend, who lives in Winter Park yesterday. Michael skied yesterday, and is getting ready to ski again today. We are up here for 3 nights and will return home tomorrow -Thanksgiving day. Since Michael works at Nordstrom, he will be working long hours and he will be quite busy right into the New Year. We all are enjoying this rest before the holidays.
On December 9, I am scheduled to have my Power Port removed. It was implanted on the right side of my chest on May 13. The Power Port is attached to a vein in my neck and has three dots under the skin. The three dots mark the spot where the nurses can have instant access to a major vein. It was used during my third surgery, my fourth hospital stay, but was put in mainly in order to administer the chemotherapy. It is quite symbolic that I get to have it removed from my body! It is only a day surgery, but please continue to keep me in your prayers, because when I had it put in I threw up for two days. Anesthesia and I have some major issues!
I am so fortunate to have such a wonderful “Healing Team” of doctors, nurses, family and friends who have supported me during this incredible journey. It has taken all of my “Healing Team” to get me through this past year, so THANK-YOU ALL!
Tomorrow is Thanksgiving and I am incredibly thankful for all of you who have prayed for me, and the GRACE OF JESUS CHRIST.
MAY ALL OF YOU HAVE A BLESSED THANKSGIVING!
Much love,
Linda
Please forgive me for being out of touch. I had my ovarian surgery on September 18, 2009. The surgeons took out both ovaries, and my appendix, too!
For the first 24 hours after surgery I had no feeling in my right side, from my waist down to my toes. When the doctor kept touching my right leg, and asking me if I could feel it, I thought that she was kidding. When the doctor and the nurses gave each other “The Look”, I knew that this was serious. It was very weird when I touched my right leg, it was cold and I could not feel anything. It was like it was someone else’s leg! Luckily my medications were changed and I started to regain the feeling in my right side. I also got muscle spasms (charley horses) in my surgical area (stomach) for the first 2 days. Even though I could only feel on my left side, it was very painful. Eventually they stopped.
It takes about one week to culture all of the tissue, liquid, etc. that was removed. The initial biopsy showed no cancer. Fortunately, one week later, the final results agreed – I had no cancer in my ovaries or stomach area! Thank-you all for your thoughts and prayers!! With your prayers and the grace of Jesus, I did not have cancer!
On October 22, 2009, I had my pneumonia shot. I thought that it would be wise to have it as a preventative measure. Well, it was my first pneumonia shot (since I am 57 years old and it is recommended for 65 years and older) and as it turns out that I am allergic to the shot! I also had cellulites, which is an infection in the same spot I had the shot.
I spent 4 days in the hospital, from October 25 – 28, for the 4th time since February 25! I asked them if I could have a brass name plaque on the door, since I was such a frequent visitor! I knew that I had been there too often when my breakfast was delivered by Viola, and she said, “Hi, Linda, I saw your name on the order and wanted to deliver it myself, so I could see you.” She is a nice woman from the Philippines, who had become my friend since my first hospital stay in February.
On November 2, 2009, I had another PET scan. PET scans literally scan your body from head to toe, to see if there are any tumors or cancer present. I got the wonderful news on Tuesday, November 3, that I was CANCER FREE!!!!
I immediately went to bed for three days. I felt like I had been running continuous marathons since February 25, 2009. It was such a relief to be able to “let down”, and not have to prepare for more surgeries, chemo or radiation. I was only able to make a brief call to my sister, Annie, to give her the good news. Annie was able to let my side of the family know and Michael emailed the Wogan family to let them know the joyous news!
I apologize that it has taken me so long to get the news to all of my friends outside of the family circle.
I will have a follow-up PET scan in May, 2010. My treatment was a very aggressive course of treatment, because my cancer was so rare. I will continue to be monitored, at least once a week by my wonderful surgeon – Dr. Brad Andrews. He is such a kind, thoughtful, and gentle man. I am so fortunate to have him as my primary ENT specialist.
I do have some side effects, which may or may not be permanent. The chemo seems to have affected my hearing in both ears. I have trouble hearing the upper tones in both ears and I am border line needing hearing aids in both ears.
Also, my eyes will continue to change for about one year after the radiation. I will be getting a new pair of glasses this next month and I am trusting they will help my vision. I am able to drive (Thank-you, Jesus!) without any problem. It has mainly affected my reading (my eyes get tired easily) and my equilibrium. I am currently using a cane, so that I do not “tip over”. I refer to myself as “weeble-wobbly”. Luckily, it only affects my equilibrium outdoors or in large, open areas. Inside I am fine, as long as the ceilings are not too high and the rooms are not too big. So, it is not a problem in my home.
On my right hand, the thumb, pointer, and middle finger, as well as on my left hand’s thumb and pointer finger all have an irritation similar to frostbite. They turn red, purple and are bumpy. There is pain in my fingers and occasionally they bleed. The doctors think that this is another side effect of the chemo.
How fortunate I am that all of these side effects are minimal! They are not really going to affect my quality of life. I am so grateful to be alive! It is amazing how your priorities change when you have come face to face with death!
I am currently writing this update at the YMCA Snow Mountain Camp at Winter Park, Colorado. It is so peaceful and tranquil up here, up in the Colorado Rocky Mountains. There is snow on the ground and it ranges from 17 degrees at night to 37 degrees during the day. We have a 3 bedroom cabin with beautiful views. Michael, Katrina, Shari and I have been enjoying the calmness of the mountains. There is no TV, so I have been busy reading, relaxing, and writing this letter. Shari is putting together a 1000 piece crossword puzzle. She is absolutely amazing! (Shari is the special needs woman who lives with us). Katrina visited an old friend, who lives in Winter Park yesterday. Michael skied yesterday, and is getting ready to ski again today. We are up here for 3 nights and will return home tomorrow -Thanksgiving day. Since Michael works at Nordstrom, he will be working long hours and he will be quite busy right into the New Year. We all are enjoying this rest before the holidays.
On December 9, I am scheduled to have my Power Port removed. It was implanted on the right side of my chest on May 13. The Power Port is attached to a vein in my neck and has three dots under the skin. The three dots mark the spot where the nurses can have instant access to a major vein. It was used during my third surgery, my fourth hospital stay, but was put in mainly in order to administer the chemotherapy. It is quite symbolic that I get to have it removed from my body! It is only a day surgery, but please continue to keep me in your prayers, because when I had it put in I threw up for two days. Anesthesia and I have some major issues!
I am so fortunate to have such a wonderful “Healing Team” of doctors, nurses, family and friends who have supported me during this incredible journey. It has taken all of my “Healing Team” to get me through this past year, so THANK-YOU ALL!
Tomorrow is Thanksgiving and I am incredibly thankful for all of you who have prayed for me, and the GRACE OF JESUS CHRIST.
MAY ALL OF YOU HAVE A BLESSED THANKSGIVING!
Much love,
Linda
Monday, September 21, 2009
Going Home
Praise God Linda’s numbness in her lower right leg has almost completely dissipated. She is now able to get out of bed and walk around on her own. Thankful her abdominal muscle spasms ceased starting Saturday. Because of all of this they are allowing us to take her home later this afternoon.
Thank you for continuing to pray for Linda to be completely restored to health. That all remaining numbness would cease and that her pain would continue to be managed.
Thank you for continuing to pray for Linda to be completely restored to health. That all remaining numbness would cease and that her pain would continue to be managed.
Saturday, September 19, 2009
Please Keep the Prayers Coming…
Last night was more challenging than any of us had anticipated. Linda started getting muscle spasms/charliehorses in her abdomen around the incision sight a little before midnight. They were so intense that she could barely breath and wasn’t able to talk. Initially they lasted between 2-3mins.
The nurse was terrific!! She noticed that there was an order for an addition pain killer on top of the epidural. However, it was the narcotic that made Linda violently throw-up after her second surgery. The nurse heard that and went through the appropriate channels to get Linda a different additional pain killer. In the end we were able to “manage” Linda’s pain, to a point.
This morning the doctors decided to take a different approach. They took her off of the narcotics and put her on an anti-inflammatory along with an additional oral pain killer. Praise God this took away the abdominal muscle spasms, allowing them to remove the catheter and helping to facilitate her getting up and moving around.
That is when it became apparent just how numb Linda still was on the lower right side of her body. At this point Linda is slowly and steadily regaining feeling on the lower right side of her body. However, they removed her epidural early this afternoon and are a bit concerned there is still numbness.
PLEASE PRAY that this numbness would cease!! That Linda’s body would come back into alignment! That she would be completely restored to health! That her pain would continue to be managed in a way that enables her to be mobile!
Thank you for your continued love, support and well wishes. I have been reading or playing the well wishes for her as they come in.
In gratitude!
The nurse was terrific!! She noticed that there was an order for an addition pain killer on top of the epidural. However, it was the narcotic that made Linda violently throw-up after her second surgery. The nurse heard that and went through the appropriate channels to get Linda a different additional pain killer. In the end we were able to “manage” Linda’s pain, to a point.
This morning the doctors decided to take a different approach. They took her off of the narcotics and put her on an anti-inflammatory along with an additional oral pain killer. Praise God this took away the abdominal muscle spasms, allowing them to remove the catheter and helping to facilitate her getting up and moving around.
That is when it became apparent just how numb Linda still was on the lower right side of her body. At this point Linda is slowly and steadily regaining feeling on the lower right side of her body. However, they removed her epidural early this afternoon and are a bit concerned there is still numbness.
PLEASE PRAY that this numbness would cease!! That Linda’s body would come back into alignment! That she would be completely restored to health! That her pain would continue to be managed in a way that enables her to be mobile!
Thank you for your continued love, support and well wishes. I have been reading or playing the well wishes for her as they come in.
In gratitude!
Friday, September 18, 2009
Sing Hallelujah!!!!
First off, Linda had a successful surgery! Praise God, the initial pathology says that it is NOT cancer. We will have the final pathology by Wednesday.
As for the surgery…they were able to remove both ovaries without damaging any of the surrounding organs. In addition to the ovaries, they also decided to take her appendix for precautionary measure. The reason being that the type of tumor the ovarian cyst was made up of, is also the type of tumor that likes to grown on the appendix. The doctors felt that it would be safer to remove the appendix now, instead of taking the chance that a tumor might develop in the future. Thus removing any potential future operation.
Her vitals were strong throughout the surgery and she had minimal blood loss.
TRULY WE COULD NOT HAVE ASKED FOR MORE!
We are expecting to be able to take Linda home Sunday afternoon or Monday. The doctor has told us that she will need to get up, out of her hospital bed and walk around tomorrow to help facilitate a speedy recovery and release from the hospital.
We thank you all for your love and support during Linda’s Healing Journey! You have all helped to carry the load on this healing journey. For that we will always be grateful!
Thank you for continuing to pray for Linda’s speed, full recovery.
As for the surgery…they were able to remove both ovaries without damaging any of the surrounding organs. In addition to the ovaries, they also decided to take her appendix for precautionary measure. The reason being that the type of tumor the ovarian cyst was made up of, is also the type of tumor that likes to grown on the appendix. The doctors felt that it would be safer to remove the appendix now, instead of taking the chance that a tumor might develop in the future. Thus removing any potential future operation.
Her vitals were strong throughout the surgery and she had minimal blood loss.
TRULY WE COULD NOT HAVE ASKED FOR MORE!
We are expecting to be able to take Linda home Sunday afternoon or Monday. The doctor has told us that she will need to get up, out of her hospital bed and walk around tomorrow to help facilitate a speedy recovery and release from the hospital.
We thank you all for your love and support during Linda’s Healing Journey! You have all helped to carry the load on this healing journey. For that we will always be grateful!
Thank you for continuing to pray for Linda’s speed, full recovery.
Tuesday, August 25, 2009
Letter from Linda
Dear Friends and Family,
Thank-you all for your prayers. I did not get a migraine nor get violently ill from the MRI last Wednesday. :o) The results did not show anything, but it does give us a baseline. After all this is the first MRI since my sinus cancer surgery on April 3.
The results of the culture did not show anything abnormal. So my ENT surgeon has done another one. He will also do one after I am done with my current 3 week supply of antibiotics, which I finish up tomorrow. I have been seeing my ENT surgeon at least once a week, sometimes even four times in week during the toughest weeks, since July 1.
One of the schools of thought is that after 30 radiation treatments and 3 chemotherapies, my eyes and sinus might be inflamed, not infected. It is just another possibility since no one can really figure out why I am still having sinus and eye issues, and occasional raised temperatures (similar symptoms of an infection) since July 11.
I am still having acupuncture twice a week, and am grateful that I am able to continue with the treatments.
My ovarian cyst surgery is still scheduled for September 18.
Life is moving along, the local Arvada, Colorado children are back in school. The autumn colors are not starting to turn yet. The majority of the birds have already left, which might mean an early fall. We are having lovely weather, mostly in the 80’s. Not too hot and not too cold.
My elementary school class of 1964 is having a reunion in LA on the weekend of March 20, 2010. I have been hearing from friends via email and the memories are flying back and forth! It brings me such joy to be back in touch with my St. Matthew’s buddies. :o)
The majority of us were together from preschool to sixth grade. They all are really like family, since we all grew up together and have known one another for over 50 years! The reunion is definitely an event that I am looking forward to! 2010 is definitely going to be a more interesting and exciting year than 2009.
Again, thank-you all for your love and prayers, especially for my next surgery.
Linda
Thank-you all for your prayers. I did not get a migraine nor get violently ill from the MRI last Wednesday. :o) The results did not show anything, but it does give us a baseline. After all this is the first MRI since my sinus cancer surgery on April 3.
The results of the culture did not show anything abnormal. So my ENT surgeon has done another one. He will also do one after I am done with my current 3 week supply of antibiotics, which I finish up tomorrow. I have been seeing my ENT surgeon at least once a week, sometimes even four times in week during the toughest weeks, since July 1.
One of the schools of thought is that after 30 radiation treatments and 3 chemotherapies, my eyes and sinus might be inflamed, not infected. It is just another possibility since no one can really figure out why I am still having sinus and eye issues, and occasional raised temperatures (similar symptoms of an infection) since July 11.
I am still having acupuncture twice a week, and am grateful that I am able to continue with the treatments.
My ovarian cyst surgery is still scheduled for September 18.
Life is moving along, the local Arvada, Colorado children are back in school. The autumn colors are not starting to turn yet. The majority of the birds have already left, which might mean an early fall. We are having lovely weather, mostly in the 80’s. Not too hot and not too cold.
My elementary school class of 1964 is having a reunion in LA on the weekend of March 20, 2010. I have been hearing from friends via email and the memories are flying back and forth! It brings me such joy to be back in touch with my St. Matthew’s buddies. :o)
The majority of us were together from preschool to sixth grade. They all are really like family, since we all grew up together and have known one another for over 50 years! The reunion is definitely an event that I am looking forward to! 2010 is definitely going to be a more interesting and exciting year than 2009.
Again, thank-you all for your love and prayers, especially for my next surgery.
Linda
Sunday, August 16, 2009
Letter from Linda
Dear Friends and Family,
I am still battling my sinus infection, the same one I have had since July 11! I am on my 3rd set of antibiotics. We are still waiting for the culture that we took on Tuesday, August 11, to come back. I guess the chemo and radiation really did mess with my immune system! Before this year, I have rarely gotten sick, and when I did, I usually got over it pretty quickly.
In addition, the neurologist would like me to do another MRI. Wednesday night, August 19 at 8:30PM, I will go to Good Samaritan Hospital and have an MRI. MRI’s don’t hurt, but they are quite noisy. I will be given a set of earphones which will play music. However, it is still like I will be in-between a set of jack hammers for 45min-1 hour.
The last time I had an MRI I was got a migraine, was nauseous and threw-up for three days. Of course, I had 2 MRI’s within the 24 hour span of my last surgery. So it was a double dose in a relatively short time right after major surgery. Please keep me in your prayers for an easy MRI with no side effects.
Katrina has come down with a sinus infection, too. It is responding to antibiotics – yea! Technically sinus infections are not contagious, but the bacterium is transferable which can lead to a sinus infection. So, Katrina did not catch it from me, but I probably gave it to her!
Since Katrina came on February 24 for two weeks, she filed an extension on her taxes. Time was up on August 15. So, she drove to LA on July 29 (the first time she has returned since February) and got back here August 3. Katrina has been driving to LA, by herself since she was 19 years old. She enjoys the quiet and solitude (she is an only child, after all!) of the two day drive. Katrina spent 2 days in LA and then spent 2 days driving back to Colorado.
My sister, Annie, came and stayed with me during this time. We had a great visit and laughed a lot. We watched a DVD called “Young at Heart”. It is a documentary about a group of senior citizens who sing songs ranging from James Brown to Coldplay. We laughed, cried, clapped and sang along. It reminded us of our dad, who sang barbershop all of his life. It was very uplifting and left us smiling.
My next surgery on September 18 is rapidly approaching. I must be well, without any infection in order to have the surgery. Please pray for me to get over this stubborn infection! Since I had my uterus out 32 years ago, I have found out that my ovaries have travelled north. (Who knew?) My surgery will involve an incision several inches above my belly button on my stomach! So, please don’t make me laugh too much right after surgery. I remember my Momma sitting in the hospital room after my C-section when Katrina was born. Every time we looked at each other we started laughing. It was so painful, several times I had to ask her to leave the room. I miss laughing with my Momma.
Our new rescue dog – Lily has adjusted beautifully. She and Mabel, our 9 year old Golden Retriever are becoming friends. Mabel always wanted to play since day one, but Lily was afraid and not sure of a dog twice her size. Lily did not know that Mabel was used to playing with Reggie, who was Lily’s size. Mabel seems so happy to have a friend again. Lily follows me around like a little shadow, just like my beloved Reggie used to. :o)
Thank-you, again, for all of your prayers and support.
Linda
I am still battling my sinus infection, the same one I have had since July 11! I am on my 3rd set of antibiotics. We are still waiting for the culture that we took on Tuesday, August 11, to come back. I guess the chemo and radiation really did mess with my immune system! Before this year, I have rarely gotten sick, and when I did, I usually got over it pretty quickly.
In addition, the neurologist would like me to do another MRI. Wednesday night, August 19 at 8:30PM, I will go to Good Samaritan Hospital and have an MRI. MRI’s don’t hurt, but they are quite noisy. I will be given a set of earphones which will play music. However, it is still like I will be in-between a set of jack hammers for 45min-1 hour.
The last time I had an MRI I was got a migraine, was nauseous and threw-up for three days. Of course, I had 2 MRI’s within the 24 hour span of my last surgery. So it was a double dose in a relatively short time right after major surgery. Please keep me in your prayers for an easy MRI with no side effects.
Katrina has come down with a sinus infection, too. It is responding to antibiotics – yea! Technically sinus infections are not contagious, but the bacterium is transferable which can lead to a sinus infection. So, Katrina did not catch it from me, but I probably gave it to her!
Since Katrina came on February 24 for two weeks, she filed an extension on her taxes. Time was up on August 15. So, she drove to LA on July 29 (the first time she has returned since February) and got back here August 3. Katrina has been driving to LA, by herself since she was 19 years old. She enjoys the quiet and solitude (she is an only child, after all!) of the two day drive. Katrina spent 2 days in LA and then spent 2 days driving back to Colorado.
My sister, Annie, came and stayed with me during this time. We had a great visit and laughed a lot. We watched a DVD called “Young at Heart”. It is a documentary about a group of senior citizens who sing songs ranging from James Brown to Coldplay. We laughed, cried, clapped and sang along. It reminded us of our dad, who sang barbershop all of his life. It was very uplifting and left us smiling.
My next surgery on September 18 is rapidly approaching. I must be well, without any infection in order to have the surgery. Please pray for me to get over this stubborn infection! Since I had my uterus out 32 years ago, I have found out that my ovaries have travelled north. (Who knew?) My surgery will involve an incision several inches above my belly button on my stomach! So, please don’t make me laugh too much right after surgery. I remember my Momma sitting in the hospital room after my C-section when Katrina was born. Every time we looked at each other we started laughing. It was so painful, several times I had to ask her to leave the room. I miss laughing with my Momma.
Our new rescue dog – Lily has adjusted beautifully. She and Mabel, our 9 year old Golden Retriever are becoming friends. Mabel always wanted to play since day one, but Lily was afraid and not sure of a dog twice her size. Lily did not know that Mabel was used to playing with Reggie, who was Lily’s size. Mabel seems so happy to have a friend again. Lily follows me around like a little shadow, just like my beloved Reggie used to. :o)
Thank-you, again, for all of your prayers and support.
Linda
Sunday, July 26, 2009
Letter from Linda
Dear Friends and Family,
Sorry for such a delayed update. The last 2 months have been quite challenging. The chemo and radiation treatments snowballed and built up with each additional treatment. My last chemo was June 29, and my last radiation was July 1. It is very interesting, but I am just now starting to feel most of the side effects wearing off. They still weren’t as bad as many other survivors experiences, so thank-you all for your prayers.
I have had a sinus infection since July 11. It has been quite a challenge to get rid of it. The second set of antibiotics seems to do the trick. I have another appointment with my ENT surgeon tomorrow; he has been seeing me regularly, sometimes several times each week, trying to keep on top of my infection. He is a wonderful person, and has steady, gentle hands, I am so lucky to have him as my doctor! I am old enough to be his mother! :o)
So, here is a wonderful blessing: my Eye surgeon does not detect any vision loss at this time! Of, course, it will take about 6 months before I am totally cleared, but I am not worried at this point. She feels very positive about my recovery and progress, so I am just going take her positive energy and run with it!
My second blood test for ovarian cancer CA-125, was 27 (the first one in March was 11), but it is still in the normal range, which is under 30.
My second ultrasound for the ovarian cyst was 9.9 cm. (the first one was 7.7 cm, although I thought they had told me 10 cm the first time?) So, actually, again, I am not going to worry about it. The chemo that was used to treat my sinus cancer is often used to treat ovarian cancer. I have an ovarian cancer specialist surgeon, along with my OBGYN doctor have both looked at the results and they both feel that the cyst is benign. Of course, we won’t know for sure until they actually biopsy it. So, let’s not worry, but let’s keep those positive prayers coming! The surgery is scheduled for September 18.
I forgot to mention my hair! After my last update and my second chemo more than a few strands fell out, so on June 10 I went in and had all of my hair, except for about one inch cut off. (I was concerned about shaving too close because of my ear to ear scar, which is healing nicely). I have the same haircut that my brother, Hughie, used to get every summer. We always referred to it as a “Cubby Bear” haircut. When I saw my radiologist, he was amazed that even though my hair had thinned in places, the only real hair loss was on the crown of my head. He said that it was the focus point of the radiation (30 treatments.) I attribute my limited hair loss to my acupuncture, which I have been going to at least twice a week since the beginning of my radiation and chemo treatments. My chemo doctor had told me that I would definitely lose all of my hair. So, if you know of anyone who is having chemo and radiation, let them know that acupuncture might help. Of course, there are good and bad acupuncturists just like good and bad massage therapists. My lady, Jana has a passion for cancer patients, since her sister has had cancer 4 times!
I want to thank-you all for your love, prayers and continued support. I am still getting notes, cards and letters. Please know that I love them all and love hearing from you! My cousin Jimmy even sent pictures of his children, along with other family pictures. I love hearing about your lives and families. Please let me know of any challenges that you might be having, too. I find that I gain strength and inner peace when I am praying for others. My other cousin Ginny, shared with me about her grandchildren being with her and her husband for “Cousins Camp”. How wonderful and uplifting! So, please keep sharing about your families and events in your lives. I get such great joy in hearing from all of you!
Much love to all of you! Thank-you all, again, for your thoughts and prayers.
Linda
Sorry for such a delayed update. The last 2 months have been quite challenging. The chemo and radiation treatments snowballed and built up with each additional treatment. My last chemo was June 29, and my last radiation was July 1. It is very interesting, but I am just now starting to feel most of the side effects wearing off. They still weren’t as bad as many other survivors experiences, so thank-you all for your prayers.
I have had a sinus infection since July 11. It has been quite a challenge to get rid of it. The second set of antibiotics seems to do the trick. I have another appointment with my ENT surgeon tomorrow; he has been seeing me regularly, sometimes several times each week, trying to keep on top of my infection. He is a wonderful person, and has steady, gentle hands, I am so lucky to have him as my doctor! I am old enough to be his mother! :o)
So, here is a wonderful blessing: my Eye surgeon does not detect any vision loss at this time! Of, course, it will take about 6 months before I am totally cleared, but I am not worried at this point. She feels very positive about my recovery and progress, so I am just going take her positive energy and run with it!
My second blood test for ovarian cancer CA-125, was 27 (the first one in March was 11), but it is still in the normal range, which is under 30.
My second ultrasound for the ovarian cyst was 9.9 cm. (the first one was 7.7 cm, although I thought they had told me 10 cm the first time?) So, actually, again, I am not going to worry about it. The chemo that was used to treat my sinus cancer is often used to treat ovarian cancer. I have an ovarian cancer specialist surgeon, along with my OBGYN doctor have both looked at the results and they both feel that the cyst is benign. Of course, we won’t know for sure until they actually biopsy it. So, let’s not worry, but let’s keep those positive prayers coming! The surgery is scheduled for September 18.
I forgot to mention my hair! After my last update and my second chemo more than a few strands fell out, so on June 10 I went in and had all of my hair, except for about one inch cut off. (I was concerned about shaving too close because of my ear to ear scar, which is healing nicely). I have the same haircut that my brother, Hughie, used to get every summer. We always referred to it as a “Cubby Bear” haircut. When I saw my radiologist, he was amazed that even though my hair had thinned in places, the only real hair loss was on the crown of my head. He said that it was the focus point of the radiation (30 treatments.) I attribute my limited hair loss to my acupuncture, which I have been going to at least twice a week since the beginning of my radiation and chemo treatments. My chemo doctor had told me that I would definitely lose all of my hair. So, if you know of anyone who is having chemo and radiation, let them know that acupuncture might help. Of course, there are good and bad acupuncturists just like good and bad massage therapists. My lady, Jana has a passion for cancer patients, since her sister has had cancer 4 times!
I want to thank-you all for your love, prayers and continued support. I am still getting notes, cards and letters. Please know that I love them all and love hearing from you! My cousin Jimmy even sent pictures of his children, along with other family pictures. I love hearing about your lives and families. Please let me know of any challenges that you might be having, too. I find that I gain strength and inner peace when I am praying for others. My other cousin Ginny, shared with me about her grandchildren being with her and her husband for “Cousins Camp”. How wonderful and uplifting! So, please keep sharing about your families and events in your lives. I get such great joy in hearing from all of you!
Much love to all of you! Thank-you all, again, for your thoughts and prayers.
Linda
Wednesday, July 15, 2009
Update on CAT Scan
At this point they don’t believe that the CAT Scan revealed any spinal fluid leakage. :o) Praise GOD! Dr. Andrews changed the antibiotic that Linda is on and we have a follow up appointment with him tomorrow afternoon. The hope is that the new antibiotic will get the infection nipped in the bud. However if it doesn’t, they may have to admit Linda into the hospital and give her a stronger antibiotic via IV. Thank you all for your prayers during this new challenge.
Linda needs Prayers…
Linda’s facial swelling initially started to go down once she started the antibiotics late Saturday night. However over that last couple of days her swelling has progressively gotten worse. She did see her primary ENT, Dr. Andrews, yesterday for a follow up and nose cleaning. At that time he said if there were any changes to call.
This morning Linda’s swelling was more pronounced then it was Saturday night. I immediately contact Dr. Andrews. Within an hour his office had arranged for a CAT Scan with contrast. Linda is currently having the CAT Scan. Once it is completed we will go over to Dr. Andrews’s office where he will read the results. When I know more I will make sure and post the results.
The main concern at this point is if there is any spinal fluid leaking. Please pray that the medical staff would make the correct diagnoses and of course for a complete healing!
This morning Linda’s swelling was more pronounced then it was Saturday night. I immediately contact Dr. Andrews. Within an hour his office had arranged for a CAT Scan with contrast. Linda is currently having the CAT Scan. Once it is completed we will go over to Dr. Andrews’s office where he will read the results. When I know more I will make sure and post the results.
The main concern at this point is if there is any spinal fluid leaking. Please pray that the medical staff would make the correct diagnoses and of course for a complete healing!
Sunday, July 12, 2009
An Exciting Saturday Evening
Last night Linda & I (Katrina) spent our Saturday evening in the emergency room. Yesterday as the day progressed, the more swollen Linda’s face became. By dinner time her face resembled her post surgery swelling. Linda’s temperature was slightly elevated, so off to the ER we went.
After hours in the ER, blood work, and consultation with the ENT (Ear Nose Throat) on call, it was decided that Linda has a sinus infection. Thankfully Linda’s white blood count was 3.9, which is NORMAL (for a non-chemo patient). The doctors felt that it would be best to give her antibiotics and send us home.
This morning the swelling has started to decrease, although it is still pronounced. She is feeling a bit better, although Linda forehead and eye region is still tender. Please continue to pray that Linda’s body is able to fight off the infection and to bring forth complete healing!
Currently Linda is having her second ultrasound on her ovaries. We believe that her 3rd surgery is going to be September 18th, although the date is not a definite yet.
Dad’s healing is going very well! Michael returned to work on Friday the 10th. He feels good and is happy to be back to work.
Thank you for continuing to pray and support our family in the midst of this challenging year!
With Love & Gratitude!
After hours in the ER, blood work, and consultation with the ENT (Ear Nose Throat) on call, it was decided that Linda has a sinus infection. Thankfully Linda’s white blood count was 3.9, which is NORMAL (for a non-chemo patient). The doctors felt that it would be best to give her antibiotics and send us home.
This morning the swelling has started to decrease, although it is still pronounced. She is feeling a bit better, although Linda forehead and eye region is still tender. Please continue to pray that Linda’s body is able to fight off the infection and to bring forth complete healing!
Currently Linda is having her second ultrasound on her ovaries. We believe that her 3rd surgery is going to be September 18th, although the date is not a definite yet.
Dad’s healing is going very well! Michael returned to work on Friday the 10th. He feels good and is happy to be back to work.
Thank you for continuing to pray and support our family in the midst of this challenging year!
With Love & Gratitude!
Sunday, July 5, 2009
What a month!
This last month has brought many new challenges. Linda’s second round of chemo was very challenging. Her energy levels were very low and she battled with extreme nausea, although she never threw up. Linda also has been struggling with swallowing. The further we got into the radiation treatments the more challenging swallowing became. On and off Linda has been limited to a liquid diet. Thankfully Linda’s sister, Annie, suggested that we get a Vita-mixer. It has truly kept Linda out of the hospital, because we have been mixing and puréeing EVERYTHING!!
Linda had her last chemo treatment on Monday the 29th and her last radiation treatment was on Wednesday July 1st. So far this round of chemo has not been as hard as the second. However she is still struggling with her energy and swallowing. Linda’s radiologist told us to expect the side effects of the treatment to continue for at least the first three weeks preceding her final treatment. At this point they are just beginning to lessen. Yesterday she was actually able to eat a whole thing of yogurt without having to blend it. This may not sound like much, but was a really big deal! Overall Linda is doing very well…all things considered.
To say that the last four months has been a bit stressful is an understatement. It has affected us all in different ways. My father Michael started experiencing chest pain and arrhythmias. A couple of weeks ago he had an abnormal stress test, which lead to a referral for a cardiologist. Michael met with his cardiologist while mother was having her last chemo treatment on the 29th. During that meeting the cardiologist suggested that Michael have a Cardiac Catheterization to make sure that he didn’t have any blockages, etc. Before we knew it Michael was scheduled for his procedure on July 2nd at St. Joe’s downtown. Thankfully, Michael only had minor plaque buildup and did not need any further intervention. He is currently home recovering from his procedure. We are so thankful that the Lord Blessed us with another ideal outcome!
Many of you have known that my mother’s little dog Reggie had not been doing well. Unfortunately on June 20th we had to put Reggie to sleep. He could barely walk, lead a lone get up from a laying potion. Then he started passing blood in his stools, as well as coughing up blood. Mom, Mabel (our golden retriever) & I (Katrina) were with Reggie when he took his last breath. Unfortunately, Michael had to be at work. We all love and miss our little dude, but know that it was the right choice.
Linda was so distraught when we got home from putting Reggie down that she got online and started looking for a shelter dog. I was determined to wait, after all we still had radiation everyday and there was no way I was going to deal with house training a new dog. However, there was this poodle mix out at the Adams County Animal Control that caught our attention. On Monday the 22nd in between doctor’s appointments and radiation we went to the pound and found the newest member of our family. Lily is an 8 year old poodle cocker mix. She is the sweetest little girl. We brought her home that Wednesday and have not had one single accident in the house. Our only challenge is that she has been struggling with a case of kennel cough. After three doctors visits our little girl is finally acting like a health well adjusted dog.
Linda had her last chemo treatment on Monday the 29th and her last radiation treatment was on Wednesday July 1st. So far this round of chemo has not been as hard as the second. However she is still struggling with her energy and swallowing. Linda’s radiologist told us to expect the side effects of the treatment to continue for at least the first three weeks preceding her final treatment. At this point they are just beginning to lessen. Yesterday she was actually able to eat a whole thing of yogurt without having to blend it. This may not sound like much, but was a really big deal! Overall Linda is doing very well…all things considered.
To say that the last four months has been a bit stressful is an understatement. It has affected us all in different ways. My father Michael started experiencing chest pain and arrhythmias. A couple of weeks ago he had an abnormal stress test, which lead to a referral for a cardiologist. Michael met with his cardiologist while mother was having her last chemo treatment on the 29th. During that meeting the cardiologist suggested that Michael have a Cardiac Catheterization to make sure that he didn’t have any blockages, etc. Before we knew it Michael was scheduled for his procedure on July 2nd at St. Joe’s downtown. Thankfully, Michael only had minor plaque buildup and did not need any further intervention. He is currently home recovering from his procedure. We are so thankful that the Lord Blessed us with another ideal outcome!
Many of you have known that my mother’s little dog Reggie had not been doing well. Unfortunately on June 20th we had to put Reggie to sleep. He could barely walk, lead a lone get up from a laying potion. Then he started passing blood in his stools, as well as coughing up blood. Mom, Mabel (our golden retriever) & I (Katrina) were with Reggie when he took his last breath. Unfortunately, Michael had to be at work. We all love and miss our little dude, but know that it was the right choice.
Linda was so distraught when we got home from putting Reggie down that she got online and started looking for a shelter dog. I was determined to wait, after all we still had radiation everyday and there was no way I was going to deal with house training a new dog. However, there was this poodle mix out at the Adams County Animal Control that caught our attention. On Monday the 22nd in between doctor’s appointments and radiation we went to the pound and found the newest member of our family. Lily is an 8 year old poodle cocker mix. She is the sweetest little girl. We brought her home that Wednesday and have not had one single accident in the house. Our only challenge is that she has been struggling with a case of kennel cough. After three doctors visits our little girl is finally acting like a health well adjusted dog.
Thank you for everyone’s love, support and prayers during this challenging time. I truly could not have survived without the six weeks of dinners. You all have helped to take a huge load of my shoulders. I can’t thank you enough!
Please continue to pray for Linda’s & Michael’s complete healing. Love to you all!
Sunday, June 7, 2009
Letter from Linda
Dear Family and Friends,
On June 3 I had my 2 month anniversary of my 2nd surgery. Yea! Every day is a gift from God!
I want to thank-you for your continuing prayers of love and support. I am able to maintain my calmness and inner peace during this incredible journey with your prayers and the grace of Jesus Christ.
Many of you have indicated how “heroic” you think I am. I am definitely no hero; I did not choose to have 3 surgeries (number 3 is going to be in August – date TBD), cancer, or chemo and radiation treatments this year. I just take each day – one day at a time. (I think true heroes volunteer or sign up for dangerous work – like our armed forces, our police officers and fireman).
You can‘t always choose what happens to you, but you can choose how you respond to it. It doesn’t matter who you are, we will all experience life, which is full of unjust situations. We (or those we love) will get serious illnesses, we will experience family challenges with spouses/parents/and/or children, financial issues, death of loved ones, job losses – the list is endless. You cannot let life’s challenges destroy your happiness, or steal your JOY.
I am curious how my cancer experience will shape my future. I already am seeing how God can take my bout with cancer and create a positive outcome. My daughter, Katrina and I go to radiation 5 days each week, with a standing 2:45PM appointment. Katrina and I enjoy talking with the same people each day, all of whom are there as drivers, or patients. There are smiles, laughter, hope and joy in the waiting room. A few, at first, seem scared, but all have starting smiling and sharing their stories. It is definitely a “safe place”. We are all there fighting for our lives and the chance to live a longer life.
My friend – Connie has set up a dinner website for the full 30 days of radiation. It has been an incredible gift. Since we are in downtown Denver Monday through Friday for radiation at 2:45 PM, we are not always home in time for dinner preparation. Almost all of the 30 days have been signed up for by friends and family. Thank-you all so much!!
Every morning I wake up and listen to the birds sing, and thank God for another day. It is amazing when facing the possibility of death with my surgery on April 3, how appreciative I am for each day. We will all die, we don’t know the date, but there is so much peace at having Jesus in your heart. He truly is the Holy Comforter.
Last Sunday morning was so joyous. I sat on the back porch, ate my breakfast and listened to the beautiful chorus of birds. We have several nests in our backyard. There are several house finches, a dove, and a chickadee family. I got out the binoculars and watched the mother chickadee feed her 3 babies for several hours – what a treat! My roses are beginning to bloom, my coral bells are lovely, and the columbine flowers under my pine tree are shades of yellow, purple, white and blue. My white peony plant is full of blooms and I am still waiting for the other two peonies to blossom. Spring is definitely my favorite time of the year! New life is flourishing all around me. :o)
Some of you have asked if radiation hurts – no, it really doesn’t hurt. It is just a bit weird and uncomfortable. Weirdness comes when the 2 foot thick door closes after everyone leaves and the flashes of blue light from the radiation begin. I am strapped to the table with a specially molded 2 foot by 3 foot mesh mask which attaches to the table and holds me – absolutely still during radiation. When the mask is removed my skin looks like “Lizard Woman”, for about one hour. I am pretty funny looking!
I have completed 13 radiation treatments – so only 17 to go! Yea! My next chemo treatment will be June 9. Michael has an early morning all store meeting and Katrina has to get Shari up with breakfast and lunch and then off to workshop. My friend Connie (Yes, the same friend who set up the dinner website) will be taking me to chemo. Michael and Katrina will come by later. Chemo takes about 5 ½ hours, so it is a long day. After chemo, Katrina will drive me downtown for my radiation treatments. My last chemo treatment was tolerable and not as bad as I expected. I am so fortunate that my doctor is giving me some very powerful and effective anti-nausea medication. As I get farther and farther away from my last chemo treatment – 20 days, today – I feel more normal and able to eat a more variety of foods. My hair is still on my head – although my scalp feels tingly, and it takes about 2-3 weeks to lose my hair. With the first loss of hair, I will go to my local JCPenny’s store where they have a private room, in order to have my head shaved. It is one way I can to control an uncontrollable situation. With my surgery scar from ear to ear, I am just going to wear scarves and hats. I think that a wig will “itch” my scar and be hot during the coming months. So, remember, this is the year of the HAT, so please all wear your hats and think of me. :o)
We had read where acupuncture can help during chemotherapy and radiation. So, I have been having 2 treatments each week, since beginning my chemo and radiation. My acupuncturist is passionate about cancer patients – her sister has had cancer 4 times! I am so lucky to have been able to find Jana.
My doctors are always impressed with my progress! I attribute this to your continued prayers, the grace of Jesus, regular acupuncture treatments, and my limited contact with my friends and family. Thank-you all for the understanding and cooperation during this time. I am, indeed, able to funnel all of my energy to my HEALING! Katrina has taken on the monumental task of my household chores, while taking care of all of my needs, and Shari’s needs. Katrina has done this on her own – I did not ask for her to give up her life for me for most of 2009. Boy, am I am lucky Mom! Katrina is doing all of this with a happy and joy- filled heart! I am able to channel all of my inner strength to healing. Michael has taken on additional household responsibilities, too, in addition to keeping his job at Nordstrom, which provides us with incredible health benefits.
As I mentioned before, my eyes continue to be a challenge for me. The radiation is causing my prescription to change, but it is useless to get new glasses until 3 weeks after radiation ends. The effects of radiation will not start until 3 weeks after the first treatment, and will continue for 3 weeks after – probably until the third week of July. My eyes get tired easily, and do not always work together. I see my eye surgeon every 2 weeks. It is a time for me to be patient until we see how radiation will affect my optical nerves. There is a 1% chance that I could lose partial or full eyesight in one or both eyes. So, thank-you all for your continued prayers. It is such a comfort knowing that you all have me in your thoughts and prayers. :o)
Much love,
Linda
On June 3 I had my 2 month anniversary of my 2nd surgery. Yea! Every day is a gift from God!
I want to thank-you for your continuing prayers of love and support. I am able to maintain my calmness and inner peace during this incredible journey with your prayers and the grace of Jesus Christ.
Many of you have indicated how “heroic” you think I am. I am definitely no hero; I did not choose to have 3 surgeries (number 3 is going to be in August – date TBD), cancer, or chemo and radiation treatments this year. I just take each day – one day at a time. (I think true heroes volunteer or sign up for dangerous work – like our armed forces, our police officers and fireman).
You can‘t always choose what happens to you, but you can choose how you respond to it. It doesn’t matter who you are, we will all experience life, which is full of unjust situations. We (or those we love) will get serious illnesses, we will experience family challenges with spouses/parents/and/or children, financial issues, death of loved ones, job losses – the list is endless. You cannot let life’s challenges destroy your happiness, or steal your JOY.
I am curious how my cancer experience will shape my future. I already am seeing how God can take my bout with cancer and create a positive outcome. My daughter, Katrina and I go to radiation 5 days each week, with a standing 2:45PM appointment. Katrina and I enjoy talking with the same people each day, all of whom are there as drivers, or patients. There are smiles, laughter, hope and joy in the waiting room. A few, at first, seem scared, but all have starting smiling and sharing their stories. It is definitely a “safe place”. We are all there fighting for our lives and the chance to live a longer life.
My friend – Connie has set up a dinner website for the full 30 days of radiation. It has been an incredible gift. Since we are in downtown Denver Monday through Friday for radiation at 2:45 PM, we are not always home in time for dinner preparation. Almost all of the 30 days have been signed up for by friends and family. Thank-you all so much!!
Every morning I wake up and listen to the birds sing, and thank God for another day. It is amazing when facing the possibility of death with my surgery on April 3, how appreciative I am for each day. We will all die, we don’t know the date, but there is so much peace at having Jesus in your heart. He truly is the Holy Comforter.
Last Sunday morning was so joyous. I sat on the back porch, ate my breakfast and listened to the beautiful chorus of birds. We have several nests in our backyard. There are several house finches, a dove, and a chickadee family. I got out the binoculars and watched the mother chickadee feed her 3 babies for several hours – what a treat! My roses are beginning to bloom, my coral bells are lovely, and the columbine flowers under my pine tree are shades of yellow, purple, white and blue. My white peony plant is full of blooms and I am still waiting for the other two peonies to blossom. Spring is definitely my favorite time of the year! New life is flourishing all around me. :o)
Some of you have asked if radiation hurts – no, it really doesn’t hurt. It is just a bit weird and uncomfortable. Weirdness comes when the 2 foot thick door closes after everyone leaves and the flashes of blue light from the radiation begin. I am strapped to the table with a specially molded 2 foot by 3 foot mesh mask which attaches to the table and holds me – absolutely still during radiation. When the mask is removed my skin looks like “Lizard Woman”, for about one hour. I am pretty funny looking!
I have completed 13 radiation treatments – so only 17 to go! Yea! My next chemo treatment will be June 9. Michael has an early morning all store meeting and Katrina has to get Shari up with breakfast and lunch and then off to workshop. My friend Connie (Yes, the same friend who set up the dinner website) will be taking me to chemo. Michael and Katrina will come by later. Chemo takes about 5 ½ hours, so it is a long day. After chemo, Katrina will drive me downtown for my radiation treatments. My last chemo treatment was tolerable and not as bad as I expected. I am so fortunate that my doctor is giving me some very powerful and effective anti-nausea medication. As I get farther and farther away from my last chemo treatment – 20 days, today – I feel more normal and able to eat a more variety of foods. My hair is still on my head – although my scalp feels tingly, and it takes about 2-3 weeks to lose my hair. With the first loss of hair, I will go to my local JCPenny’s store where they have a private room, in order to have my head shaved. It is one way I can to control an uncontrollable situation. With my surgery scar from ear to ear, I am just going to wear scarves and hats. I think that a wig will “itch” my scar and be hot during the coming months. So, remember, this is the year of the HAT, so please all wear your hats and think of me. :o)
We had read where acupuncture can help during chemotherapy and radiation. So, I have been having 2 treatments each week, since beginning my chemo and radiation. My acupuncturist is passionate about cancer patients – her sister has had cancer 4 times! I am so lucky to have been able to find Jana.
My doctors are always impressed with my progress! I attribute this to your continued prayers, the grace of Jesus, regular acupuncture treatments, and my limited contact with my friends and family. Thank-you all for the understanding and cooperation during this time. I am, indeed, able to funnel all of my energy to my HEALING! Katrina has taken on the monumental task of my household chores, while taking care of all of my needs, and Shari’s needs. Katrina has done this on her own – I did not ask for her to give up her life for me for most of 2009. Boy, am I am lucky Mom! Katrina is doing all of this with a happy and joy- filled heart! I am able to channel all of my inner strength to healing. Michael has taken on additional household responsibilities, too, in addition to keeping his job at Nordstrom, which provides us with incredible health benefits.
As I mentioned before, my eyes continue to be a challenge for me. The radiation is causing my prescription to change, but it is useless to get new glasses until 3 weeks after radiation ends. The effects of radiation will not start until 3 weeks after the first treatment, and will continue for 3 weeks after – probably until the third week of July. My eyes get tired easily, and do not always work together. I see my eye surgeon every 2 weeks. It is a time for me to be patient until we see how radiation will affect my optical nerves. There is a 1% chance that I could lose partial or full eyesight in one or both eyes. So, thank-you all for your continued prayers. It is such a comfort knowing that you all have me in your thoughts and prayers. :o)
Much love,
Linda
Thursday, May 21, 2009
A letter from Linda
Thank-you for all of your prayers!
I am in the midst of beginning my chemo and radiation treatments.
So far I have not had any bad nausea or throwing up – what a blessing!
The chemo treatment is not as bad as I had anticipated, it was very long, about 5 ½ hours. At the end, I was so relaxed that I actually got into a deep sleep for the last hour of treatment.
I have not been reading my emails regularly, so I apologize for not replying.
My eyes get tired easily, and I found that it took about 2 weeks after surgery before I could read the fine print on the newspaper. I love to read, so this has been a challenge for me. I have also had some minor issues with eye infections, but it seems to be clearing up.
The radiation treatments side effects will probably kick in about the 1st week of June. I am not sure how this will affect my vision. There is a 1% chance of me losing sight in one or both eyes. Losing partial sight is also a possibility in one or both eyes. Please keep me in your prayers for the complete eradication from all cancer cells, and maintaining my vision.
Thus, there is a possibility that I will not be reading my emails for awhile.
Katrina will be keeping you posted on my progress, as time allows, and as new information is available.
Thank-you, again for your prayers – they are obviously working!
I am in the midst of beginning my chemo and radiation treatments.
So far I have not had any bad nausea or throwing up – what a blessing!
The chemo treatment is not as bad as I had anticipated, it was very long, about 5 ½ hours. At the end, I was so relaxed that I actually got into a deep sleep for the last hour of treatment.
I have not been reading my emails regularly, so I apologize for not replying.
My eyes get tired easily, and I found that it took about 2 weeks after surgery before I could read the fine print on the newspaper. I love to read, so this has been a challenge for me. I have also had some minor issues with eye infections, but it seems to be clearing up.
The radiation treatments side effects will probably kick in about the 1st week of June. I am not sure how this will affect my vision. There is a 1% chance of me losing sight in one or both eyes. Losing partial sight is also a possibility in one or both eyes. Please keep me in your prayers for the complete eradication from all cancer cells, and maintaining my vision.
Thus, there is a possibility that I will not be reading my emails for awhile.
Katrina will be keeping you posted on my progress, as time allows, and as new information is available.
Thank-you, again for your prayers – they are obviously working!
Tuesday, May 19, 2009
1st day of Chemo & Radiation Update
Keep the prayers coming…they are working!! Linda has had a magnificent day and we are praying that will continue! She has yet to get sick and her energy levels are surprisingly high for what she went through today.
The morning started with Linda having a bit of anxiety. However that was quickly rectified once we were at the hospital. The nurse gave Linda a FANTASTIC anti-anxiety drug, which helped her to be calm for the rest of the day. Chemo took 5 ½ hours. Then we ran downtown for radiation. Radiation took longer than it was supposed to. They had Linda in her facial mask, strapped down to the table for 30mins, which is double the maximum time that it was supposed to take. For whatever reason the radiation machine was giving them a hard time, but they eventually got it.
Currently Linda is sleeping and we are praying for a restful night with no complications! Thank you for your continued prayers and for those helping with the meals, they are truly making a difference!!
The morning started with Linda having a bit of anxiety. However that was quickly rectified once we were at the hospital. The nurse gave Linda a FANTASTIC anti-anxiety drug, which helped her to be calm for the rest of the day. Chemo took 5 ½ hours. Then we ran downtown for radiation. Radiation took longer than it was supposed to. They had Linda in her facial mask, strapped down to the table for 30mins, which is double the maximum time that it was supposed to take. For whatever reason the radiation machine was giving them a hard time, but they eventually got it.
Currently Linda is sleeping and we are praying for a restful night with no complications! Thank you for your continued prayers and for those helping with the meals, they are truly making a difference!!
Sunday, May 17, 2009
You asked...
Greetings dear friends and family,
You all have been so kind during this challenging time…always saying, “let me know if there is anything I can do to help?” Well, I am making good on my promise to let you all know what we need. We need meals during Linda’s radiation and chemotherapy treatments. I, Katrina, will be chauffeuring her to and from her daily doctor’s appointments through the next 6 weeks of treatment. I have found that getting Shari off to workshop, then getting Linda ready and to her doctor’s appointment(s) and then having dinner ready isn’t working so well. Well, having dinner ready that is. As a result we are asking to have meals delivered. We are in need of meals Monday-Friday for the next 6 weeks.
One of Momma’s dear friends is organizing this effort, Connie Siebenrock. She has created a page on www.lotsahelpinghands.com. The direct link is www.lotsahelpinghands.com/c/614251/. It is a quick and easy way to see what days still need to be covered and then to fill those needs. If you have any questions or would rather work directly with Connie, please feel free to contact her at csiebenrock@comcast.net.
We thank you all for your compassion and help! If you wish to bring meals please follow the following guidelines:
We are in need of dinner for 4 adults. We are sorry to be so specific, but Shari sees a dietician monthly and Linda needs to have well balanced meals for her healing.
Things We LOVE
Chicken breast, lean beef, fruits and veggies.
Our Favorite Meals
Mexican food, BBQ beef or chicken, curried beef or chicken, teriyaki chicken, lean meatloaf (no sausage added please) and we would also love to try your family’s favorite chicken dish. :o)
Dietary Restrictions
Please no fried foods, no pork, no bacon, no hot dogs, no sausage, no fish, no seafood, no gravy, no mushrooms and no sauerkraut.
Please limit:
Sugar, sweets and carbohydrates.
If containers need to be returned, please label each item and be willing to pick it back up at the Wogan’s. The containers will be cleaned and placed in the cooler at the front door within 48hrs of being dropped off. Once again, thank you for helping to make the challenging time easier on all of us!
An update on Linda:
Linda had minor surgery to place her infusaport in her chest on Wednesday. The surgery went really well, however after the surgery Linda suffered from an extreme case of nausea. Linda’s nausea continued until Friday when she had her acupuncture appointment. It was AMAZING the difference in Linda after she had her first acupuncture appointment! It completely eliminated ALL of Linda’s nausea! We are so excited to see how adding acupuncture to Linda’s treatments over the next 6 weeks will make Linda’s Healing Journey a more tolerable one!!
This next week is going to be busy! On Monday morning Linda has her introduction to chemotherapy class, followed by a quick eye appointment. Then we run downtown to St. Joe’s for Linda to have her test run of radiation. Tuesday brings another early morning starting with blood work, IV for hydration, doctor’s appointment and then finally her chemo treatment. After chemo we run from the north side of town to downtown Denver, for Linda’s first official radiation treatment. Talk about a long day. Wednesday Linda will have a radiation and acupuncture treatment. Thank God the acupuncturist office is less than 5 mins from our house! Thursday and Friday Linda will only have her radiation treatments. Then we rest through the weekend to do it all over again. :o)
Thank you for continuing to pray for my little momma as we go through this next stage of her treatment. Specifically that she would maintain her sight and that it would NOT be altered negatively! That miraculously Linda would not be affected by any side effects during these treatments! That ALL cancer would be COMPLETELY ELIMINATED from her body!
You all have been so kind during this challenging time…always saying, “let me know if there is anything I can do to help?” Well, I am making good on my promise to let you all know what we need. We need meals during Linda’s radiation and chemotherapy treatments. I, Katrina, will be chauffeuring her to and from her daily doctor’s appointments through the next 6 weeks of treatment. I have found that getting Shari off to workshop, then getting Linda ready and to her doctor’s appointment(s) and then having dinner ready isn’t working so well. Well, having dinner ready that is. As a result we are asking to have meals delivered. We are in need of meals Monday-Friday for the next 6 weeks.
One of Momma’s dear friends is organizing this effort, Connie Siebenrock. She has created a page on www.lotsahelpinghands.com. The direct link is www.lotsahelpinghands.com/c/614251/. It is a quick and easy way to see what days still need to be covered and then to fill those needs. If you have any questions or would rather work directly with Connie, please feel free to contact her at csiebenrock@comcast.net.
We thank you all for your compassion and help! If you wish to bring meals please follow the following guidelines:
We are in need of dinner for 4 adults. We are sorry to be so specific, but Shari sees a dietician monthly and Linda needs to have well balanced meals for her healing.
Things We LOVE
Chicken breast, lean beef, fruits and veggies.
Our Favorite Meals
Mexican food, BBQ beef or chicken, curried beef or chicken, teriyaki chicken, lean meatloaf (no sausage added please) and we would also love to try your family’s favorite chicken dish. :o)
Dietary Restrictions
Please no fried foods, no pork, no bacon, no hot dogs, no sausage, no fish, no seafood, no gravy, no mushrooms and no sauerkraut.
Please limit:
Sugar, sweets and carbohydrates.
If containers need to be returned, please label each item and be willing to pick it back up at the Wogan’s. The containers will be cleaned and placed in the cooler at the front door within 48hrs of being dropped off. Once again, thank you for helping to make the challenging time easier on all of us!
An update on Linda:
Linda had minor surgery to place her infusaport in her chest on Wednesday. The surgery went really well, however after the surgery Linda suffered from an extreme case of nausea. Linda’s nausea continued until Friday when she had her acupuncture appointment. It was AMAZING the difference in Linda after she had her first acupuncture appointment! It completely eliminated ALL of Linda’s nausea! We are so excited to see how adding acupuncture to Linda’s treatments over the next 6 weeks will make Linda’s Healing Journey a more tolerable one!!
This next week is going to be busy! On Monday morning Linda has her introduction to chemotherapy class, followed by a quick eye appointment. Then we run downtown to St. Joe’s for Linda to have her test run of radiation. Tuesday brings another early morning starting with blood work, IV for hydration, doctor’s appointment and then finally her chemo treatment. After chemo we run from the north side of town to downtown Denver, for Linda’s first official radiation treatment. Talk about a long day. Wednesday Linda will have a radiation and acupuncture treatment. Thank God the acupuncturist office is less than 5 mins from our house! Thursday and Friday Linda will only have her radiation treatments. Then we rest through the weekend to do it all over again. :o)
Thank you for continuing to pray for my little momma as we go through this next stage of her treatment. Specifically that she would maintain her sight and that it would NOT be altered negatively! That miraculously Linda would not be affected by any side effects during these treatments! That ALL cancer would be COMPLETELY ELIMINATED from her body!
Tuesday, May 12, 2009
Letter from Linda
Dear Friends and Family,
Thank-you all for your prayers, love and support!! I attribute my successful surgery to your prayers and the grace of Jesus Christ. I am doing a great job of healing and am very blessed because that is all I have to do right now - HEAL. My daughter, Katrina is my primary care-taker and in addition, has taken over most of the household duties that I used to do. Michael continues to work and provide health insurance, as well as providing more help around the house and the yard, now that spring is here.
I will start radiation and chemotherapy on May 18. The doctor wants to do 33 days of radiation, if I can tolerate it. I will definitely be doing 30 days of radiation – 5 days a week for 6 weeks. Katrina will be my chauffeur. I will be doing 3 chemo treatments; one in the week of May 18 and the following 2 will be every 21 days. I am going to get acupuncture during this time too, because we have heard that it may help the side effects of the treatments.
I will still need your prayers (and you all have such a great track record!). There is a chance that the radiation could affect partial or full vision in one or both eyes. PLEASE PRAY for success in eliminating my body of even the smallest cancer cells, while maintaining my vision. My job is a host home provider for a wonderful 39 year old woman named Shari. It is similar to being a foster parent, except for developmentally disabled adults. It is my passion and my ministry – I need to be able to drive in order to continue having Shari in our home.
Shari has lived with us since November, 2007. She is a part of our family and we all love and adore her! Katrina has become certified as a Host Home Provider, so that Shari can come back to our home. Shari has been in respite, since my first surgery on February 25, 2009. She moves back home this evening, Tuesday, May 12! We are all so excited to have her here. Please pray for Katrina (it was her idea and initiative) to be able to easily handle one more job. Shari is very high functioning and independent, and can be left alone for 6 to 8 hours. Shari is anxious to come home and “help out the family,” especially with our two dogs – Mabel and Reggie. (They were the initial reason Shari decided to move in with our family)
Thank you all for your grace, in understanding the infrequent updates. I was on meds every 4 hours when I came home. This is not good for getting into a deep sleep. Katrina slept in the room with me, in case I needed help. It has been a time of sleep deprivation for all of us. I would have been in assisted living if Katrina was not here to take care of me. The addition we completed this last summer, adding a main floor master with the handicapped accessible shower was a major factor in my being released from the hospital. (I did not think that I would need them for 25 – 30 years!)
Since my CA125 blood work came back negative, and the ultrasound tests were not suspicious looking, we are going to wait until August to remove the cystic mass on my ovaries. The only way to really tell if it is cancer, is to remove the ovaries and to biopsy them. Since we know that my sinus cancer is very aggressive, we are opting for the treatment to kill the known cancer first. We do not have a date set in August, but we will let you know as soon as we know.
The updates will probably be infrequent during the time of chemo and radiation. My chemo treatment is about 30 minutes north of us – at Good Samaritan Hospital, and my radiation treatment is located at St. Joseph Hospital in downtown Denver – about 30 minutes south of us. We will be in the car most of the days, and it is going to require a lot of energy – not only mine, but Katrina’s too. So I want to thank you all in advance for keeping all of us in your prayers, even if we do not have regular updates.
Much love and appreciation for all of you,
Linda H. Wogan
Thank-you all for your prayers, love and support!! I attribute my successful surgery to your prayers and the grace of Jesus Christ. I am doing a great job of healing and am very blessed because that is all I have to do right now - HEAL. My daughter, Katrina is my primary care-taker and in addition, has taken over most of the household duties that I used to do. Michael continues to work and provide health insurance, as well as providing more help around the house and the yard, now that spring is here.
I will start radiation and chemotherapy on May 18. The doctor wants to do 33 days of radiation, if I can tolerate it. I will definitely be doing 30 days of radiation – 5 days a week for 6 weeks. Katrina will be my chauffeur. I will be doing 3 chemo treatments; one in the week of May 18 and the following 2 will be every 21 days. I am going to get acupuncture during this time too, because we have heard that it may help the side effects of the treatments.
I will still need your prayers (and you all have such a great track record!). There is a chance that the radiation could affect partial or full vision in one or both eyes. PLEASE PRAY for success in eliminating my body of even the smallest cancer cells, while maintaining my vision. My job is a host home provider for a wonderful 39 year old woman named Shari. It is similar to being a foster parent, except for developmentally disabled adults. It is my passion and my ministry – I need to be able to drive in order to continue having Shari in our home.
Shari has lived with us since November, 2007. She is a part of our family and we all love and adore her! Katrina has become certified as a Host Home Provider, so that Shari can come back to our home. Shari has been in respite, since my first surgery on February 25, 2009. She moves back home this evening, Tuesday, May 12! We are all so excited to have her here. Please pray for Katrina (it was her idea and initiative) to be able to easily handle one more job. Shari is very high functioning and independent, and can be left alone for 6 to 8 hours. Shari is anxious to come home and “help out the family,” especially with our two dogs – Mabel and Reggie. (They were the initial reason Shari decided to move in with our family)
Thank you all for your grace, in understanding the infrequent updates. I was on meds every 4 hours when I came home. This is not good for getting into a deep sleep. Katrina slept in the room with me, in case I needed help. It has been a time of sleep deprivation for all of us. I would have been in assisted living if Katrina was not here to take care of me. The addition we completed this last summer, adding a main floor master with the handicapped accessible shower was a major factor in my being released from the hospital. (I did not think that I would need them for 25 – 30 years!)
Since my CA125 blood work came back negative, and the ultrasound tests were not suspicious looking, we are going to wait until August to remove the cystic mass on my ovaries. The only way to really tell if it is cancer, is to remove the ovaries and to biopsy them. Since we know that my sinus cancer is very aggressive, we are opting for the treatment to kill the known cancer first. We do not have a date set in August, but we will let you know as soon as we know.
The updates will probably be infrequent during the time of chemo and radiation. My chemo treatment is about 30 minutes north of us – at Good Samaritan Hospital, and my radiation treatment is located at St. Joseph Hospital in downtown Denver – about 30 minutes south of us. We will be in the car most of the days, and it is going to require a lot of energy – not only mine, but Katrina’s too. So I want to thank you all in advance for keeping all of us in your prayers, even if we do not have regular updates.
Much love and appreciation for all of you,
Linda H. Wogan
Saturday, April 25, 2009
Long awaited update…
First, thank you all for your continued love and support during this long journey. Secondly, I am sorry for the delay with this update. Life has been a bit tiring lately. Once we had Linda home all the sudden we became responsible for making sure that she took her pain pills every 4 hrs. I, Katrina, went 10 days of interrupted sleep every 4-5hrs. All I can say is that I found out that I don’t operate at even half capability when sleeping so sporadically. For those who have called or emailed, I am truly sorry that I haven’t responded. I just didn’t have the energy or brain power to respond!
Even though Linda is now taking her pain pills every 6 hrs and she is now in charge of taking them herself…we have found that sleep is still VERY IMPORTANT! As a result when trying to reach us, PLEASE ONLY CALL ONE of our phone numbers and leave a message. We promise we will return your call when we have the energy. Also, PLEASE DON’T CALL BEFORE 1pm MST, because the phone ringing wakes Linda up. Thank you for your understanding. I know that you all love Linda and call out of concern, but this is what she is going to need in order to beat this!
As for an update:
It has been 3 weeks since Linda’s surgery. Linda has been home for 11 days. The first few days were all about getting settled, in a routine and sleep. Basically we were up every 4 hrs and the rest of the time was spent trying to sleep.
On Thursday the 16th Linda had an appointment with one of her nasal surgeons. Dr. Andrews said that Linda was doing fantastic and then proceeded to pick off portions of the scabbed over wound from the inside of her nose. Linda will keep on having an appointment to continue the removal of the scabs weekly until they are gone.
Linda had the staples removed from her head on Tuesday the 21st. She was very concerned that it would hurt. However, we were all pleasantly surprised when it was painless. Actually Linda barely felt anything. PRAISE GOD! She was so energized that after her appointment she wanted to go out to eat. This was the first time that Linda had been out to eat since before the surgery. Afterwards she still felt so fantastic that she insisted that we go shopping and get her a few new nightgowns. When Macy’s didn’t have what we were looking for she insisted that we go to Dillard’s. Even though she found what she wanted, she was on such a role that we also went to The Rack. It was a GREAT day!
Well, the next day Linda paid for her grand adventures. She was exhausted and fought her pain more than she had been, making her appointment with the OB/GYN that day a bit more challenging. It was our first meeting with her OB/GYN, Dr. Winters, to discuss the growths on her ovaries. It turns out that she has a mass on her left ovary that is just under 10cm/4in and also a smaller one on the right ovary. Dr. Winters ordered an ovarian ultrasound to get a better look. She is going to consult with another specialist from St. Joe’s. If they feel that the masses are suspicious there is a slim chance that they may move the 3rd surgery to remove her ovaries up to early May, before she starts chemo and radiation on May 18th. We should know more by the end of next, beginning of the following week.
Today was a very busy day. The afternoon started with Linda’s consultation with the oncologist. Due to the pathology they are recommending a very concentrated form of chemo. Basically he explained that SNUC tends to be more aggressive than other forms of nasal cancer. Because of that they are concerned that if they don’t completely eradicate it, that it will have a stronger chance of reoccurring then in other forms of nasal cancer. He is suggesting a six week cycle in conjunction with the radiation. Together he said that it should increase the potency of the radiation increasing our chances of destroying any cancer that may be remaining. Mother is so determined to live and only have to do this once that she said, “Let’s do it!”
All day Linda has been fighting pain more than usual. This is because they are trying to switch up her pain medicine. This made for a very interesting day/evening. Our day concluded with a 9:30pm appointment for her ovarian ultrasound. It was quite the adventure, as Linda had to drink 32oz of water an hour prior to the appointment and had to HOLD IT. :o/ What a trooper! She did it!! Yet once we were home her pain was so severe that she was crying. Linda has gone back to her other pain pills and we are praying they will enable her to a restful night’s sleep!
This weekend is all about resting up for another round of doctor’s appointments next week. I promise the updates will continue, just at a slower pace as I have the energy. After all Linda is my main focus at the moment. Thank you again for your love, support and prayers during the marathon of a journey!!
PRAYER REQUESTS: That God would guide Linda, our family and the doctors in how to proceed with the 3rd surgery, helping us to prioritize what is truly important/life threatening. That God would COMPLETELY ERADICATE ALL THE CANCER FROM HER ENTIRE BODY!! That God would give our family the STRENGTH to run the MARATHON BEFORE US!! That Linda would NOT be WEAKENED by the chemo and radiation! FOR GOOD HOLY REST/SLEEP!!!!!! Lots of it! And of course, however else the Lord may guide you.
Even though Linda is now taking her pain pills every 6 hrs and she is now in charge of taking them herself…we have found that sleep is still VERY IMPORTANT! As a result when trying to reach us, PLEASE ONLY CALL ONE of our phone numbers and leave a message. We promise we will return your call when we have the energy. Also, PLEASE DON’T CALL BEFORE 1pm MST, because the phone ringing wakes Linda up. Thank you for your understanding. I know that you all love Linda and call out of concern, but this is what she is going to need in order to beat this!
As for an update:
It has been 3 weeks since Linda’s surgery. Linda has been home for 11 days. The first few days were all about getting settled, in a routine and sleep. Basically we were up every 4 hrs and the rest of the time was spent trying to sleep.
On Thursday the 16th Linda had an appointment with one of her nasal surgeons. Dr. Andrews said that Linda was doing fantastic and then proceeded to pick off portions of the scabbed over wound from the inside of her nose. Linda will keep on having an appointment to continue the removal of the scabs weekly until they are gone.
Linda had the staples removed from her head on Tuesday the 21st. She was very concerned that it would hurt. However, we were all pleasantly surprised when it was painless. Actually Linda barely felt anything. PRAISE GOD! She was so energized that after her appointment she wanted to go out to eat. This was the first time that Linda had been out to eat since before the surgery. Afterwards she still felt so fantastic that she insisted that we go shopping and get her a few new nightgowns. When Macy’s didn’t have what we were looking for she insisted that we go to Dillard’s. Even though she found what she wanted, she was on such a role that we also went to The Rack. It was a GREAT day!
Well, the next day Linda paid for her grand adventures. She was exhausted and fought her pain more than she had been, making her appointment with the OB/GYN that day a bit more challenging. It was our first meeting with her OB/GYN, Dr. Winters, to discuss the growths on her ovaries. It turns out that she has a mass on her left ovary that is just under 10cm/4in and also a smaller one on the right ovary. Dr. Winters ordered an ovarian ultrasound to get a better look. She is going to consult with another specialist from St. Joe’s. If they feel that the masses are suspicious there is a slim chance that they may move the 3rd surgery to remove her ovaries up to early May, before she starts chemo and radiation on May 18th. We should know more by the end of next, beginning of the following week.
Today was a very busy day. The afternoon started with Linda’s consultation with the oncologist. Due to the pathology they are recommending a very concentrated form of chemo. Basically he explained that SNUC tends to be more aggressive than other forms of nasal cancer. Because of that they are concerned that if they don’t completely eradicate it, that it will have a stronger chance of reoccurring then in other forms of nasal cancer. He is suggesting a six week cycle in conjunction with the radiation. Together he said that it should increase the potency of the radiation increasing our chances of destroying any cancer that may be remaining. Mother is so determined to live and only have to do this once that she said, “Let’s do it!”
All day Linda has been fighting pain more than usual. This is because they are trying to switch up her pain medicine. This made for a very interesting day/evening. Our day concluded with a 9:30pm appointment for her ovarian ultrasound. It was quite the adventure, as Linda had to drink 32oz of water an hour prior to the appointment and had to HOLD IT. :o/ What a trooper! She did it!! Yet once we were home her pain was so severe that she was crying. Linda has gone back to her other pain pills and we are praying they will enable her to a restful night’s sleep!
This weekend is all about resting up for another round of doctor’s appointments next week. I promise the updates will continue, just at a slower pace as I have the energy. After all Linda is my main focus at the moment. Thank you again for your love, support and prayers during the marathon of a journey!!
PRAYER REQUESTS: That God would guide Linda, our family and the doctors in how to proceed with the 3rd surgery, helping us to prioritize what is truly important/life threatening. That God would COMPLETELY ERADICATE ALL THE CANCER FROM HER ENTIRE BODY!! That God would give our family the STRENGTH to run the MARATHON BEFORE US!! That Linda would NOT be WEAKENED by the chemo and radiation! FOR GOOD HOLY REST/SLEEP!!!!!! Lots of it! And of course, however else the Lord may guide you.
Monday, April 13, 2009
Linda is Home! :o)
Linda came home this evening after 11 days in the hospital. 5 of those days were spent in ICU. We have had two very busy days…thus the lack of updates. We are all very tired, but doing well. I will do my best to have a complete update posted by tomorrow evening.
Thank you again for tremendous love and support during this challenging time!!
Thank you again for tremendous love and support during this challenging time!!
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